That's terrible that anyone, especially a family member would say something like that. Defiantly something you can't just shrug off and forget I'm sure, but like you said it takes all kinds in this world, some you just have to shake your head and ignore what they say.
Sucks that some of those organizations are that way. Seems some of them just have their own agenda which is not in the child's best interest. Something that you sadly find to often. My 34 yr old cousin was born with really bad cerebral palsy, she can't speak or walk these days. Her parents do a lot of work with a number of CP organizations, Shriners and other things for children with handicaps/conditions and for the most part all the ones they work with are really good groups, but I know there are some out there just try to push their own agenda or just money driven etc etc.